National Newborn Screening Follow-up Initiative: Report after Year 1

Joseph Telfair; Sonya I. Ross

National Newborn Screening Follow-up Initiative: Report after Year 1

Joseph Telfair
, Sonya I. Ross

Health Policy & Community Health

Sickle Cell Disease Association of America

Research output: Contribution to conference › Presentation

Abstract

For over three decades the outcome of NBS work has been a better understanding of the epidemiology of sickle hemoglobinopathies in newborns, consequent life saving care protocols, and effective provider & public education.

Despite well funded projects, NBS follow-up efforts have been and remains problematic. Very little has been documented about the effectiveness of follow-up of NBS. A joint 3 year effort between the SCDAA and the MCHB of HRSA began in 2002 with their SCD NBS.

Original language	American English
State	Published - Apr 2004
Event	National Sickle Cell Program Annual Meeting - Los Angeles, CA Duration: Apr 1 2004 → …

Conference

Conference	National Sickle Cell Program Annual Meeting
Period	04/1/04 → …

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Disciplines

Medicine and Health Sciences
Public Health

Keywords

NBS
SCD
Sickle cell disease

Cite this

@conference{971bd40544974afdac9c4724bd794269,

title = "National Newborn Screening Follow-up Initiative: Report after Year 1",

abstract = " For over three decades the outcome of NBS work has been a better understanding of the epidemiology of sickle hemoglobinopathies in newborns, consequent life saving care protocols, and effective provider \& public education. Despite well funded projects, NBS follow-up efforts have been and remains problematic. Very little has been documented about the effectiveness of follow-up of NBS. A joint 3 year effort between the SCDAA and the MCHB of HRSA began in 2002 with their SCD NBS.",

keywords = "NBS, SCD, Sickle cell disease",

author = "Joseph Telfair and Ross, \{Sonya I.\}",

note = "National Coordinating and Evaluation Center; National Sickle Cell Program Annual Meeting ; Conference date: 01-04-2004",

year = "2004",

month = apr,

language = "American English",

}

TY - CONF

T1 - National Newborn Screening Follow-up Initiative

T2 - National Sickle Cell Program Annual Meeting

AU - Telfair, Joseph

AU - Ross, Sonya I.

N1 - National Coordinating and Evaluation Center

PY - 2004/4

Y1 - 2004/4

N2 - For over three decades the outcome of NBS work has been a better understanding of the epidemiology of sickle hemoglobinopathies in newborns, consequent life saving care protocols, and effective provider & public education. Despite well funded projects, NBS follow-up efforts have been and remains problematic. Very little has been documented about the effectiveness of follow-up of NBS. A joint 3 year effort between the SCDAA and the MCHB of HRSA began in 2002 with their SCD NBS.

AB - For over three decades the outcome of NBS work has been a better understanding of the epidemiology of sickle hemoglobinopathies in newborns, consequent life saving care protocols, and effective provider & public education. Despite well funded projects, NBS follow-up efforts have been and remains problematic. Very little has been documented about the effectiveness of follow-up of NBS. A joint 3 year effort between the SCDAA and the MCHB of HRSA began in 2002 with their SCD NBS.

KW - NBS

KW - SCD

KW - Sickle cell disease

UR - http://www.sicklecelldisease.net/index.php?option=com_docman&task=doc_details&gid=218&Itemid=67

M3 - Presentation

Y2 - 1 April 2004

ER -

National Newborn Screening Follow-up Initiative: Report after Year 1

Abstract

Conference

UN SDGs

Disciplines

Keywords

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