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Patient Centered Outcomes Research Tennessee Sickle Cell Disease Network: An Operational Manual for Engaging Sickle Cell Patient Families in Patient Centered Outcomes Research

  • Tilicia Mayo-Gamble
  • , Velma McBride Murry
  • , Trevor K. Thompson
  • , Nabilah Lari
  • , Jennifer Cunningham-Erves
  • , Alexis Gorden
  • , Lametra Scott
  • , Vanessa Steele
  • , Janice Reed
  • , Justin Flowers
  • , Alexandria Thompson
  • Vanderbilt University
  • The Sickle Cell Foundation of Tennessee
  • Meharry Medical College
  • Breaking the SSCycle Foundation
  • Local Community Health Ambassador
  • Medical Association of North Georgia

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